Braves-Nation.com Polycystic Kidney Disease (PKD) Support

[McCarroll21]

Let me preface this by saying that this guy is one of my favorite YouTubers. Some of you have seen links I've posted in the chat room to some of his videos. This has nothing to do with me or will not benefit me in anyway.

Anyway, on to the video:
http://www.youtube.com/watch?v=XKa6Te3OLTU

Some more about PKD (from wikipedia):

Polycystic kidney disease (also known as Polycystic Kidney Syndrome)(PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterized by the presence of multiple cysts (hence, "polycystic") in both kidneys. The disease can also damage the liver, pancreas, and rarely, the heart and brain. The two major forms of polycystic kidney disease are distinguished by their patterns of inheritance.

Autosomal dominant polycystic kidney disease (ADPKD) is generally a late-onset disorder characterized by progressive cyst development and bilaterally enlarged kidneys with multiple cysts. Kidney manifestations in this disorder include renal function abnormalities, hypertension, renal pain, and renal insufficiency. Approximately 50% of patients with ADPKD have end-stage renal disease (ESRD) by the age of 60. ADPKD is, however, a systemic disease with cysts in other organs such as the liver (which may lead to cirrhosis), seminal vesicles, pancreas, and arachnoid mater and non-cystic abnormalities such as intracranial aneurysms and dolichoectasias, dilatation of the aortic root and dissection of the thoracic aorta, mitral valve prolapse, and abdominal wall hernias.

Initial simian and human symptoms are hypertension, fatigue, and mild to severe back or flank pain and urinary tract infections. The disease often leads to chronic renal failure and may result in total loss of kidney function, known as end stage renal disease (ESRD), which requires some form of renal replacement therapy (e.g. dialysis).

Autosomal recessive polycystic kidney disease (ARPKD) is much rarer than ADPKD and is often lethal. The signs and symptoms of the condition are usually apparent at birth or in early infancy.

Just thought I'd throw this out there for any of you who would wish to donate and/or able to be in the area and go walk.

Links:
To join the walk or donate
http://www.pkdcure.org/goto/sxephil

To find out more about PKD
http://www.pkdcure.org

If you donate, do one of two things:

1. in the name box, place "(Your name) from Braves-Nation.com"
2. state that you're from Braves-Nation.com in a personal message to Phil.

I ask you to do that because when September 15 rolls around, I want to know how much as a community we donated to this cause.

[allisonb]

Thank you so much for your video. I work at the PKD Foundation and we are thrilled by your video. No one advertises for PKD, but you did. Thank you so much for your time and effort. It was great. Enjoy the Walk!

[McCarroll21]

Thank you so much for your video. I work at the PKD Foundation and we are thrilled by your video. No one advertises for PKD, but you did. Thank you so much for your time and effort. It was great. Enjoy the Walk!

Ahh! Just to clear things up, it's not my video. It's Phil DeFranco of PhillyD.tv. He originally posted the video on YouTube and I thought I would do what I can to help get the word out there. I won't be able to walk, at least not at that particular one [trying to find one in my area], but I am planning on donating in support of Phil based on the donations made by those from the website. The plan is to match what is donated, but depending on what efforts are made here, it may have to cut into a percentage of such.

Phil has a blog up on his website containing the video.

It benefits Phil and others more than it does myself, but as Phil said in his blog, "I've decided to try and use my visibility on the internet for a good cause."

[kellyl]

Phil-

Your efforts are to be commended! Thank you for putting the word out there about PKD, the Foundation and your efforts to rasie money for a cure. We are so appreciative of everything you are doing to shed more light on PKD and for walking in Tampa this year.

All the best!
Kelly Lynch- PKD Foundation